Today was supposed to be day 15 (week 3) of Topotecan, but once again my white count was lower than the minimum to allow treatment. The minimum was 1000 and today I was at 940 compared to last week when I was at 700. When I talked to the doctor today, she told me that she was going to lower the dose next week and start cycle 2 even though I didn't get day 8 or day 15 in cycle 1. She has said that the dose will be lowered each time until the white counts are ok. She said there was one lady who had to get treated at 2 mg compared to the 3.5 I was started with two weeks ago. The recommended starting dose is 4 and my doctor never starts people at that level as very few people tolerate it.
There was one piece of encouraging news...I haven't had a lot of abdominal pain or burping recently so apparently this is doing something as she believes that those symptoms are caused by the tumors growing on the bowel. She also told me that I looked better than she had seen me in months, which was really encouraging. I won't know for sure until she pulls the CA-125 next week. I also have been able to wear the compression stockings to reduce the swelling in my legs and feet, although after a day or two of wearing them I need to take a break from them as it starts hurting.
I just hope the good news continues!
Hi..Mylot sent me here..And tho I know there is no enough words I can give you to ease your every pain this disease causing you but I want you to know youve got a friend from Philippines praying for your total recovery..God is great and He will always be..
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