6/16 update: chemo round 5

Well, I made it to another day, but it didn't go as expected.  I got here and I was in the computer as being expected, but somehow, I hadn't been added to the chemo schedule so they had to call in a nurse four hours early to be in the room with me during the densitization.

I got to the hospital at about 10 am or so, but since they weren't expecting me for chemo, the pharmacy didn't have everything that was needed so we had to wait until 1pm before they could get me started.  Everything went as expected during the first half of the treatment and it was ok through the first bag of the carboplatin.  About 2/3 way through the second bag of carbo, I started itching and I showed it to the nurse that was with me.  About 5 minutes later she decided to turn it off.  She had the other chemo nurse come in so she could call the doctor for instructions.  The other nurse started the procedures for handling the reaction (more benedryl and steroid).  Less than an hour later the reaction was gone, but the word came back from the doctor that there would be no more carbo given ever.  If I reacted to 5.66 mg of it, there was no way to use it at all.

I talked to the doctor this morning when she came through and she didn't know if I would be allowed to continue on the study since the carbo was part of it, but if they try to kick me off of it she was going to talk to them to try to convince them that since I had received it 4/6 of my treatments that not having it for the last one shouldn't affect the study results.  Even if they don't continue me, she is still considering keeping me on the avistan because it showed good results on studies for first time occurrences and the purpose of this study was to see if it helps on recurrences.  I really do hope that they let me continue!

I just got my discharge papers and finished my lunch so now I just need to pack up this machine and get ready to go home.